Hilary
Posted by: Hilary
19th Feb 2012 12:19pm
I would like to hear from anyone that has Neurofibromatosis. My husband has it. He suffers a lot of pain. He has seen specialists and doctors but nothing seems to help. They think it's nerve pain, mainly in the leg and sometimes back. Sometimes he wants the leg removed but the pain might just go some where else. A lot of people have NF and there'd be people going thru this sort of pain. I'd like to hear what has helped you and if you belong to any support groups. Thank you.
You must be a member to reply to this chat topic. Click here to sign in.
Help Caféstudy members by responding to their questions, or ask your own in Café Chat, and you will get the chance of earning extra rewards. Caféstudy will match these and donate equally to our two chosen Australian charities.
Australian Marine Conservation Society are an independent charity, staffed by a committed group of scientists, educators and passionate advocates who have defended Australia’s oceans for over 50 years.
ReachOut is the most accessed online mental health service for young people and their parents in Australia. Their trusted self-help information, peer-support program and referral tools save lives by helping young people be well and stay well. The information they offer parents makes it easier for them to help their teenagers, too.
Challenge Challenge is a not-for-profit organisation that supports children and families living with cancer, 365 days a year.
Our support is free and immediate, helping to lighten the cancer journey by addressing the practical, social, and emotional needs of all our members.
Our support is free and immediate, helping to lighten the cancer journey by addressing the practical, social, and emotional needs of all our members.