Charities & Causes

medical research

Charities & Causes

Posted by: 19chris51

18th Jan 2011 11:21am

My son is disabled with sca (Spina Cerebella Ataxia) there is no medical research going on for this as so few are diagnosed with it in Australia, so please medical research

19chris51
  • 9th Mar 2011 10:00am

Hi! Jo, nice to hear from you, I still fumble through this site, so you are not alone there.
Yes my Son (who is 35 yrs) has also has been diagnosed with Cerebella Atropy, he also has some sort of a metabolic defiency, would your metabolic disorder be something to do with Pyruvate Dehydrogenase?My son is very interested to find answers,he has also been diagnosed with epilepsy, he also suffers from bad pain in his cerebella region (Trigeminal nerve) which goes all around his face as well.
He has not had an MRI for probably 2 years (which I personally find disgusting) the specialists up here ( seem to just not bother, I would be interested and so would my son to hear more aboat your diagnosis, and your Specialists opinion, until next time, please take care, and yes you are right no brain surgury sounds quite a daunting thought.....


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