Charities & Causes

medical research

Charities & Causes

Posted by: 19chris51

18th Jan 2011 11:21am

My son is disabled with sca (Spina Cerebella Ataxia) there is no medical research going on for this as so few are diagnosed with it in Australia, so please medical research

19chris51
  • 23rd Feb 2011 05:05pm

in answer to your question..yes, its such a rare condition effecting so few people,itis too much expense, (of course those words were not spoken, but it what it seemed to imply)Goodness, I even been in touch with my local and Federal MP`s to try and assit us with Housing (we live in Dept Housing) we need modified housing, we have been on the transfer list for 3 years(Medical), we have supplied them with Specialists letters (several) and OP`s, still waiting, and the MP`s can not help, and least one answered me, the other seems to have ignored me, sorry just venting again, and yes, I will count my blessings,I still have my precious Son, a lovely a equally precious Daughter (whom has POTS) and 3 beautiful grandchildren (in Victoria) thankyou


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