medical research

Posted by: 19chris51

18th Jan 2011 11:21am

My son is disabled with sca (Spina Cerebella Ataxia) there is no medical research going on for this as so few are diagnosed with it in Australia, so please medical research

19chris51

21st Feb 2011 06:01pm

yes, it is apparently too expensive, and unfortunitly I don`t have the money to go overseas, it is apparently 1 in 300,ooo in this country, considering our population, thats is not many....... it is a mix between Parkinsons-spina abifita-motor neurines disease plus MS has some of all the symptons, with killer headaces,epilespy and of course his nervous system is degenerating, he is 35 yeats old and can not do much except sleep most of the day and night, no it is no excuse for the medical board to ignore it, but it is in the too hard basket... THANKYOU for your time with this I guess I just have to vent because people seem to pat him on the head, then say go away (even Spesialists), it is frustrating watching him try to do lots of things.

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